- Community Resources
- Dedicated Support
- B the Inspiration
Living life is what inspires us. Check out our stories and get inspired, too.
“My inspiration is that life is beautiful, that being with him is something wonderful.” — Juanita
[ALL IN SPANISH WITH SUBTITLES]
My name is Jose Antonio Carnero. I was born in Lima, Peru, South America. I have severe Hemophilia B and I was diagnosed when I was born because in my family there were a lot of people with the same condition.
At first, since the word hemophilia in the family was quite common, I would see my uncle with hemophilia, my cousin with hemophilia. For me, I thought that that was my world, that everything was hemophilia.
When I went to school and I realized there were kids that were different from me, they could run, they could play sports, and I couldn't do almost anything because since I was very young my joints were really bad, of course.
I don't remember very well when I was 5, 6, 7 years old, but from then, 8, 9 years old, I already knew that I was very different. That I couldn't do many things.
And during my school years, it did affect me because I was absent. I would miss class a lot, my classes at school.
At 18, 19 years old, I promised myself that hemophilia was not going to interfere with my life. Because I thought, "I'm not going to be able to be like this my whole life. I have to get out of this kind of negative thing, get something positive."
When I felt well I lived my life, I would go out with my guy friends and girl friends. During that time was when I met my wife, and I tried to live my life. And I went to college. My hemophilia did not stop me from going to college.
TITLE CARD: What message do you want to share with the hemophilia B community?
I could tell them to have, to have a lot of faith in themselves. That hemophilia is not an impediment to reach their dreams, achieve their goals, study.
That marrying a person who has this condition doesn't stop you at all from being happy.
TITLE CARD: What inspires you?
What inspires me is to help other people, help my hemophilia community, clear doubts, certain doubts they have, give them hope.
I think they have to be optimistic in life. They have to think that we have a future. If I could do it, I think that you all can do it.
I have more time to do the things I like. I like to cook. At some point I learned to fix computers and that was my hobby. I can enjoy life with my daughters, with my wife.
My inspiration is that life is beautiful, that being with…having him, is something wonderful, and having had my three daughters and that I see that everything is fine.
Please read below for Indications and Detailed Important Risk Information for RIXUBIS. See full Prescribing Information.
RIXUBIS is an injectable medicine used to replace clotting factor IX that is missing in adults and children with hemophilia B (also called congenital factor IX deficiency or Christmas disease).
RIXUBIS is used to control and prevent bleeding in people with hemophilia B. Your healthcare provider may give you RIXUBIS when you have surgery. RIXUBIS can reduce the number of bleeding episodes when used regularly (prophylaxis).
You should not use RIXUBIS if you are allergic to hamsters or any ingredients in RIXUBIS.
You should tell your healthcare provider if you have or have had any medical problems, take any medicines, including prescription and non-prescription medicines, such as over-the-counter medicines, supplements or herbal remedies, have any allergies, including allergies to hamsters, are nursing, are pregnant or planning to become pregnant, or have been told that you have inhibitors to factor IX.
Allergic reactions have been reported with RIXUBIS. Call your healthcare provider or get emergency treatment right away if you get a rash or hives, itching, tightness of the throat, chest pain or tightness, difficulty breathing, lightheadedness, dizziness, nausea, or fainting.
Your body may form inhibitors to factor IX. An inhibitor is part of the body's defense system. If you form inhibitors, it may stop RIXUBIS from working properly. Consult with your healthcare provider to make sure you are carefully monitored with blood tests for development of inhibitors to factor IX.
If you have risk factors for developing blood clots, the use of factor IX products may increase the risk of abnormal blood clots.
Common side effects that have been reported with RIXUBIS include: unusual taste in the mouth, limb pain, and atypical blood test results.
Call your healthcare provider right away about any side effects that bother you or if your bleeding does not stop after taking RIXUBIS.
Please see RIXUBIS full Prescribing Information.
You are encouraged to report negative side effects of prescription drugs to the FDA. Visit www.fda.gov/medwatch, or call 1-800-FDA-1088.
© 2016 Shire US Inc., Lexington, MA 02421. All rights reserved. 1-800-828-2088.
SHIRE and the Shire Logo are registered trademarks of Shire Pharmaceutical Holdings Ireland Limited or its affiliates.
BAXJECT, B the Inspiration Logo, FREEDOM OF CHOICE, and RIXUBIS are trademarks or registered trademarks of Baxalta Incorporated, a wholly owned, indirect subsidiary of Shire plc.